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The patient perspective

An early diagnosis may offer patients, their families and carers both reassurance and an ability to plan for the future. With a greater understanding of the condition and prognosis, informed decisions can be made about both treatment and care. The kinds of issues patients may wish to consider include:

  • Family and carer support
  • Long-term care arrangements
  • Finances
  • Power of attorney
  • End-of-life decision making
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